Sick Kid

I brought Emily back to her pediatrician, Dr. Perzley, today. She is still wheezing and will be on a nebulizer at least another week. She weighs 11 lbs 9 oz, up 2 oz from Friday even though this poor kid is so sick.

NAM Appt. #10

Dr. Grayson said Emily's columella was 4 mm on one side and 3 mm on another and the goal is to stretch it to 5 mm. Her palate hasn't begun to come together so he adjusted the NAM by flattening the top. He didn't put the nasal bridge on yet - hopefully we won't need that - it's a piece of plastic that connects the stents just beneath the tip of her nose. It would apply a lot of pressure to the columella and the reason I don't want to deal with it is because I'm afraid it will cause blisters, hurt her and generally complicate things. She was so good today. She hardly cried at all until it got later and I know she was tired. She fell asleep at 6 pm in the car and is still asleep as of 7:30. It means she'll be up early.

Early Intervention - First Visit

The team from EI was here today - 5 people in all! They said Emily is on target developmentally, but we're really worried about her hearing. She slept for half the visit and was wide awake for the other half. They will send a speech pathologist twice a month to start.

NAM - Appt. 7

Emily's appointment went really well today. Dr. Grayson took lots of pictures of her nostrils because they were taking the shape of the stents. He rounded the stents to make them more natural. Emily cried the entire time the NAM was out which felt like forever, but was only about 10 minutes. She fell asleep sucking on Dr. Grayson's finger when he put it back in. Dr. G. said her columella was 3 mm and it was stretching so well he didn't need to put the nasal bridge on. She weights 10 lbs. 13 oz with her clothes and diaper on.