NAM Woes
I just added a post with pictures of Emily's NAM - check it out. I put this post back in May for those people starting from the beginning (mostly new parents just starting out with the NAM.
Emily has been pulling out her NAM a lot since Wednesday (it's now Saturday).At first we thought it was because she was just getting more adept at using her hands and the NAM was the most accessible "toy" she had, but now I'm wondering if it's because it's uncomfortable. We haven't been to NYU since last Wednesday which is a long time to go between adjustments.
I called Dr. Grayson's office yesterday and whoever I spoke with said she didn't think it was the NAM not fitting right because there were no irritations and Emily wasn't cranky. Of course right after I got off the phone with her Emily got irritable and really started rubbing her nose on her left side. She also screams and cries a lot more than usual when we put the NAM in, so I'm thinking something's up. I'll see what Dr. Grayson says on Tuesday. Until then, I've been putting a smear of Eucerin on the entire surface of the nasal stents to make them slide in easier and she's wearing gloves (poor baby). The Eucerin seems to help.
Emily's favorite toy!
Emily has been pulling out her NAM a lot since Wednesday (it's now Saturday).At first we thought it was because she was just getting more adept at using her hands and the NAM was the most accessible "toy" she had, but now I'm wondering if it's because it's uncomfortable. We haven't been to NYU since last Wednesday which is a long time to go between adjustments.
I called Dr. Grayson's office yesterday and whoever I spoke with said she didn't think it was the NAM not fitting right because there were no irritations and Emily wasn't cranky. Of course right after I got off the phone with her Emily got irritable and really started rubbing her nose on her left side. She also screams and cries a lot more than usual when we put the NAM in, so I'm thinking something's up. I'll see what Dr. Grayson says on Tuesday. Until then, I've been putting a smear of Eucerin on the entire surface of the nasal stents to make them slide in easier and she's wearing gloves (poor baby). The Eucerin seems to help.
Emily's favorite toy!
posted by Jackie at 9/04/2004 08:49:00 AM
3 Comments:
My Name is Desiree and my son is scheduled for his first surgery on Valentine's Day. I am so greatful to have found out about NAM, I was so worried about what my son was going to have to endure growing up. I was born with a Cleft Lip and was teased so badly that I used to come home crying from school. I only wish that they had come up with this when I was going throught it.
My son has gotten to the point where he knows how to manipulate the device to where the nasal stint comes out. I am having the hardest time keeping it in his nose. Not only that but the wet boogies make it that much easier for him to get it out. Do you have any suggestions?
My Name is Desiree and my son is scheduled for his first surgery on Valentine's Day. I am so greatful to have found out about NAM, I was so worried about what my son was going to have to endure growing up. I was born with a Cleft Lip and was teased so badly that I used to come home crying from school. I only wish that they had come up with this when I was going throught it.
My son has gotten to the point where he knows how to manipulate the device to where the nasal stint comes out. I am having the hardest time keeping it in his nose. Not only that but the wet boogies make it that much easier for him to get it out. Do you have any suggestions?
Desiree,
I don't have your e-mail address so I'm posting my response on the blog. Since your son's surgery is coming up soon, my best advice to you is to just bear with him and keep putting the NAM back in when he takes it out. We had very similar issues with Emily when she was close to the end of the NAM process (as this post shows). I think the stents got so large that they made her uncomfortable, so you may want to mention to your team that he's taking out his NAM to see if they can alleviate the pressure in his nose somewhat - if his columella is at a good length, this may help. However, he may be taking it out simply because he can and because he's discovered it's a fun toy.
Emily's site has been moved to www.cleftstories.com, by the way :)
Best,
Jackie
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